Writing on this blog has made me start writing on my family one! It's nice to see people are still out there using the blogs.
Yesterday, Trent went in for surgery and once he was dressed and had the IV in, his dr told us they had ordered the wrong medication so that we would have to wait or reschedule in the next four weeks. We had gotten there at 6:30 a.m. and by 2:00 they took him back for the hour procedure. He did really well, and he isn't allowed to talk at all for a week. I gave him a bell to ring if he needs me, and many times he rings the crap out of it. I keep thinking he is trying to be funny, but then there are times he really needs me ASAP. Point is I need to tell him the story of the "Boy Who Cried Wolf." We are hoping this will be a temporary boost to help his vocal cord. If it works, then by the time it wears off we are hoping it made improvments, if not then we may do it again until the year is up and we can do something more permanent. We go in to find out if we just need to do petscans every six months to make sure this mass doesn't come back or if we need other treatments on Monday.
Wednesday, February 19, 2014
Monday, February 17, 2014
Update
We now have a team of doctors working on Trent. I'm sure they are excited because its not everyday you get to work on someone rare;) jk. Anyways we do go in tomorrow to have a same day surgery to so a temp fix for his vocal cords. He still talks like a little old man, sounds like he has larengitis, and coughs so bad he pukes. He seriously sounds like he has some horrible flu bug but alas it isn't. Poor guy has lost 20 pounds already.
Thursday, February 6, 2014
The Voice
The last two days have been filled with doctor visits. We saw that one of Trent's vocal cords isn't moving at all so he will need to go in for another surgery to try to temporarily help it. In a year if its not fixed then we can do something more permanent. Thanks for all your prayers. We see the oncologist here in a few weeks, otherwise nothing has changed in what we know thus far.
Sunday, February 2, 2014
Rare creature
Update- We are still getting tests done, and seeing a bunch of different dr's this week so we don't have all the answers yet, but we found out Trent has something even more rare than thymoma . We are In the works of figuring out a treatment plan up at Huntsman Cancer Institute.
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